Welcome!

I've been ill for.. a long time! Diagnosed at 14 with PCOS and treated by laparoscopy but the little meanies keep coming back every few years and I've had another 3 operations since. At 20 I began working in London and all things seemed relatively sunny. Loved my job, wonderful family, great friends then *flmph* 4 years filled with crippling pain until eventually Google assisted with diagnosing bowel and abdominal Endometriosis. The diagnosis took this long because consultants, even professors automatically put the pain down to 'anxiety'. After one bodged operation in 2011 an -actual- specialist fixed me all up. Ready to go back to life again, excited about new job and *flmph* I lose my voice for a month, great.. Then in Jan 2012 (age 26) have a 'functional stroke' (happy new year!), thrombolysed, gain Raynaud's, dissociative seizures or functional attacks including facial spasm, dysphonia, limb weakness/paralysis, circulation problems and now in 2013 with the shiny addition of spasms and electric shocks all over the place! In short, I'm a bit broken. I've been 'officially' diagnosed with FND, PCOS, Endo, Raynaud's and Hypermobility Syndrome. With all those things combined it leads me to think there is something not quite right. I hope to learn, collect information and at very least I'd like to help anyone that finds themselves in the situation I am in. It's a scary place.

Wednesday, 6 March 2013

Getting there!

Progress on this blog is slow.. very slow! I've spent a lot of the day thinking about FND and then a big chunk of it going over my previous conditions and trying to include everything that happened last year relating to the functional stuff. It's actually really stressful so I did some stuff to take my mind off it but yet just before going to bed my brain comes straight back to reading bits and still thinking what needs sorting out. The more I think over the situation the more I question everything. Especially after today's addition of nerve problems in a new place. I don't understand why but again it points straight to neuralgia and compression. I wish I didn't have to think about this stuff and that things would just be normal but how do I do that when I've got electric shocks zapping me. If there has been a mistake and there is nerve deterioration then at least I can try to help this before it gets any worse. All the functional stories that I've read have similar elements to my story and yet are very very different, the more I read the clearer this becomes. I guess me writing this shows the mental struggle to completely trust a diagnosis given to you by someone who know's nothing about you :/. Anyway, hopefully I'll have the 'about me' section done by tomorrow and then I don't have to think about that stuff for a while \o/.
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