Welcome!

I've been ill for.. a long time! Diagnosed at 14 with PCOS and treated by laparoscopy but the little meanies keep coming back every few years and I've had another 3 operations since. At 20 I began working in London and all things seemed relatively sunny. Loved my job, wonderful family, great friends then *flmph* 4 years filled with crippling pain until eventually Google assisted with diagnosing bowel and abdominal Endometriosis. The diagnosis took this long because consultants, even professors automatically put the pain down to 'anxiety'. After one bodged operation in 2011 an -actual- specialist fixed me all up. Ready to go back to life again, excited about new job and *flmph* I lose my voice for a month, great.. Then in Jan 2012 (age 26) have a 'functional stroke' (happy new year!), thrombolysed, gain Raynaud's, dissociative seizures or functional attacks including facial spasm, dysphonia, limb weakness/paralysis, circulation problems and now in 2013 with the shiny addition of spasms and electric shocks all over the place! In short, I'm a bit broken. I've been 'officially' diagnosed with FND, PCOS, Endo, Raynaud's and Hypermobility Syndrome. With all those things combined it leads me to think there is something not quite right. I hope to learn, collect information and at very least I'd like to help anyone that finds themselves in the situation I am in. It's a scary place.

Tuesday, 19 March 2013

Purple spot!

Today is not such a good day. Started off by having a shower and donning some DVT stockings afterwards to see if this would help my legs at all as the pharmacist recommended this a couple of weeks ago. I got ready and went with my step mum to the local supermarket to get some bits and have lunch. Almost immediately I noticed a pain on the top of my left foot. Soon after, another pain started in my back, right hand side just below my shoulder blade. When we sat down to eat I noticed a purple blob in my right hand, below and to the left of my knuckle. I don't like the appearance of something like this as it looks very similar to the dark purple lump that appeared on my kneecap after I was thrombolysed. After we ate it was time to pick up a few bits but soon I got another pain, the same as the other two in my head and I started to feel quite sick. I can feel the left side of my mouth weakly trying to pull a bit but it's not gone into the usual droop/spasm. I don't like this, it's worrying and I don't understand what's going on :(. Functional? I don't know about functional purple blobs.
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