Welcome!

I've been ill for.. a long time! Diagnosed at 14 with PCOS and treated by laparoscopy but the little meanies keep coming back every few years and I've had another 3 operations since. At 20 I began working in London and all things seemed relatively sunny. Loved my job, wonderful family, great friends then *flmph* 4 years filled with crippling pain until eventually Google assisted with diagnosing bowel and abdominal Endometriosis. The diagnosis took this long because consultants, even professors automatically put the pain down to 'anxiety'. After one bodged operation in 2011 an -actual- specialist fixed me all up. Ready to go back to life again, excited about new job and *flmph* I lose my voice for a month, great.. Then in Jan 2012 (age 26) have a 'functional stroke' (happy new year!), thrombolysed, gain Raynaud's, dissociative seizures or functional attacks including facial spasm, dysphonia, limb weakness/paralysis, circulation problems and now in 2013 with the shiny addition of spasms and electric shocks all over the place! In short, I'm a bit broken. I've been 'officially' diagnosed with FND, PCOS, Endo, Raynaud's and Hypermobility Syndrome. With all those things combined it leads me to think there is something not quite right. I hope to learn, collect information and at very least I'd like to help anyone that finds themselves in the situation I am in. It's a scary place.

Monday, 4 March 2013

The 1st YouTube Upload!


The first video post is done, yey! I wasn't expecting to be feeling so rubbish today or have lost my voice but I saw it as a good opportunity to get the blog started. As I say in the YouTube comment it was very hard for me to talk throughout the video and think. I know that sounds silly but I'm not used to talking at camera's sitting on the desk when there isn't anyone else there. When I'm ill too it gets increasingly hard to think and form proper sentences. Everything just slows down.

So today I finally managed to get the blog together and I'm pleased with the outcome of the banner :). It will most likely end up with me blabbing on/croaking on to the Internet but I have a hope that it might help something in the greater scheme of things. If it helps one person, I'm happy. I'm not a 'well' bunny and I haven't been for a while but I'll try and get the 'About Me' section done tomorrow so that at least that part makes partial sense. For now I'll just keep working on getting some videos and photos up then sort some other bits.

That's it for now!


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